Man with his Parrot

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Spinal Injuries Association – SIA

Our aim is to reach everyone with a spinal cord injury, to tackle whatever barriers they face, and to connect them to all the help and support they need to flourish in their lives, in the way they want and choose.

Our vision

We won’t stop until we live in a world where every person with a spinal cord injury gets the chance to lead a fulfilled life.

What we do

Every two hours, a person’s life is changed when they sustain a spinal cord injury (SCI). Their world – and that of their family – is turned upside-down. Spinal cord injury can be caused by accidents, illnesses and health conditions.

Our NHS helps put newly injured people on the road to rebuilding their lives; we guide them throughout the rest of the journey.

Our holistic approach to supporting people who are spinal cord injured and their loved ones means we provide the time, expertise and connections essential to making pathways towards a fulfilled life.

Practical support

Life with SCI can look different to that led before injury. Our careers, relationships and even our homes might change. And this isn’t to say that has to be a negative. Essential to getting through the changes is the support of people who have been there before and understand what you’re going through. That’s why our support coordinators are here to support newly injured people even before hospital discharge.

Our team of support coordinators can advise on everything from employment, travel, accessibility, housing, finances and more. They can also refer on to more appropriate services if they are unable to help with certain needs or enquiries.

I really didn’t know who to speak to about my difficulties, so I just put up with everything. You have made such a massive difference to me.

While our NHS is put under increasing pressure the need for advocacy and support has never been greater. Thanks to our freephone support line, a listening ear is available on the end of the phone for all in the SCI community.

Clinical support

Our team of SCI clinical specialists, which includes nurses and an occupational therapist, ensure every person with SCI gets the very best care wherever they receive it. The team can advise people with SCI and their loved ones on clinical care, such as bowel and bladder management and skin care, and can help create vitally important documents, such as the potentially life-saving emergency care plans.

The team also shares its many years of SCI specialist knowledge with other healthcare professionals and people working with people with SCI to ensure all receive the treatment and care needed to lead healthy and fulfilling lives.

Essential, practical medical and emotional support for the injured person and family. You really changed the outcomes for the better.

Emotional support

Our own research revealed the worrying scale of the psychological toll of spinal cord injury, with half of the people living with SCI in our study saying they had experienced mental health problems. We also know that speaking with someone who can understand what you’re going through is especially helpful in times of need, which is why we offer all in the spinal cord injury community free talking therapies with our specialist counselling service run by people with SCI.

Amplifying SCI people’s voices

We believe every person with a SCI has the right to a fulfilled life and should be treated fairly and with respect. We also believe the SCI community should be listened to in the corridors of power where decisions that affect their lives are made – there should be nothing about us without us.

To ensure this happens, we campaign on the issues that matter to people with SCI and their loved ones. Among that which we push for are specialised mental health services, a better understanding of how the care crisis affects disabled people and adequate provision of vital specialist healthcare for all people with SCI.

Forging connections

We know it takes a solid support network to rebuild a life after injury, and our growing network of trusted partners is integral to that. Whatever help is needed, whether it be care, financial planning or legal representation, we bring people with SCI and experts in various fields together to forge life-changing connections wherever they are in the country.

SIA have always been a source of reassurance, advice and support with all my enquiries. Cannot recommend them enough.

How it all started

Susan Cunliffe-Lister, Baroness Masham of Ilton, was one of Britain’s first Paralympic medallists and our president.  She became paralysed below the chest following a riding accident in 1958. After her injury, she became aware of the lack of specialist medical care available to all newly injured people and the scarcity of information and advice available after discharge from hospital. Out of these twin concerns, Spinal Injuries Association was founded in 1974.

Baroness Masham who sadly passed away in March 2023 advocated long and hard for health equality and disability rights, especially in her role as a crossbench member of the House of Lords.

Our patron: the Princess Royal

Princess Anne has been a great source of support and encouragement. She became our patron on our 10th anniversary in 1984 and has faithfully supported us as we have grown and developed over the years.

The princess regularly attends our events and was the guest of honour when we opened our HQ, SIA House in Milton Keynes, in 2005.

Our reports and policies

Find out more about the work we do in our reports, including our impact report and research papers.  And find out more about the way we work in our policies. Click on the buttons below to read them:

EQUALITY, DIVERSITY, AND INCLUSION AT SIA

our reports and publications

our policies

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So sorry for the radio silence of late ….

So sorry for the radio silence of late, but world has been turned a little upsidedown 🙁
Had been in hospital for just over 2 months, QMC then a rehab unit after a spinal operation. At home how since week before christmas. However, legs are still very unstable and am moving around [oh so slowly ] on crutches, always frightened of falling. My left hand has returned to near full function again, but i still have a gammey right hand. Hard to hold a pen, cutlery, pick my nose or operate a mouse. [bugger, am right handed]. It’s taking me some time i guess, before I can get onto so many project, as left in September /Oct!!

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Compare & Contrast

What a pair, me with spinal stuff and David S with gammy foot.

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Finally got home from hospital

Finally got home from hospital and my spine op. Been away for a couple of months but glad to be home again. Normal service is still some way away. All feeling so fragile still. But doing my best

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Discharged from Linden Lodge

Finally discharged from Linden Lodge at the City Hospital to home YAY!!

Will now have some continued physiotherapy at home. Getting a little better every day ….. but ohhhh so slowly.

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WALKING!

This is my first walk since the spinal operation. Once around the ‘circuit’, here at Linden Lodge, City Hospital. I didn’t know if i was going to be able to walk, so emotional and I burst into tears when finished. 🙂

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Testing my fingers on a camera.

Testing my fingers on a camera for the first time since the op. My index finger still need some work. Wasn’t in the right place for the shutter button!

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Languishing on hospital bed

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Hospital Ward

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Transferred from QMC to Linden Lodge

Transferred from the Queens Medical Centre QMC to Linden Lodge at the City Hospital, Nottingham for rehab

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Neck Brace … a fashion accessory

All producing a beard…. that reminded me of the Man in the Iron Mask !!

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Spinal Operation

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Admitted to QMC with a degenerative cervical myelopathy

Collapsed and both my hands stopped working. Operation and lots of rehab to follow.

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How the Sound Sanctuary is keeping Notts ravers safe

Words: Rose Mason . Illustrations: Lily Keogh

Thursday 18 September 2025

A lover of music and the underground rave scene, Magda realised the parties they were attending were under-delivering on safety. In 2023, they began The Sound Sanctuary: a travelling stand, a bunch of supplies and a few passionate people providing first aid and drug education to help partiers feel safe in the rave… 

Rave Illustration JPEG

“I wanted to create a little haven of safety in a place that can be scary and can be unpredictable” says Magda, a young University of Nottingham student who has been pouring their spare time and budget into this project for the last two years.

“We have a gazebo or table and we provide water, food, vitamins, medicine, first aid – we’re fully first aid trained. We have volunteer nurses and paramedics as well, part of our team, who have experience at festivals.”

The team carry naloxone at all times – an opioid (and synthetic opioid) overdose reversal medication, that can be used in cases of emergency – and all the core members are trained to administer it. Magda says that luckily, they have never had to.

“We also give out a lot of leaflets, condoms, sanitary products, ear plugs and devices for safer use and disease control like clean supplies, disinfectant, sanitizer, or sniffing straws because using contaminated notes can cause transmission of Hep C and HIV,” says Magda. “And then we usually have an area where people can come sit and relax. One of our other lead members is a grade two counselor, so if someone just wants to have a chat because they’re not having a good time, or they’ve lost their friends or something, they can sit down, have a breather, have some water. We also have a tent. If anyone needs to sleep, you can have a little nap.”

The Sound Sanctuary collective mainly operates within the illegal and underground rave scene, but Magda stresses this initiative is needed in legal events too: “you get welfare officers, stewards and security at clubs. But it’s obviously very hush about the realities of the scene and how to pay attention to everyone,” Magda explains.  

Denying that people take drugs at parties avoids taking the very first step towards understanding how to help them. “We’ve all been at a party where we’re witnessing someone who’s taken a bit of a turn for the worst and we’re not quite sure what to do with them,” says Cerys, another core Sound Sanctuary volunteer. 

We usually have an area where people can come sit and relax. One of our other lead members is a grade two counselor, so if someone just wants to have a chat because they’re not having a good time, or they’ve lost their friends, they can sit down and have a breather

“Often on a night out, it isn’t a question of emergency. If we need to refer to emergency services, we know exactly how to, but a lot of times, referring people in those states to emergency services is only going to make it worse, because it increases a lot of paranoia, rather than someone sitting there holding your hand and saying, ‘It’s gonna be okay’”. Magda says, “Just having someone at the rave that you can lean on if you need it, it makes a massive difference.” 

“I think that’s why work like what we do can be so powerful,” says Cerys. “We make them feel comfortable.”

It’s not just drug use or bad trips that might lead people to needing a moment of calm. Raves are loud, immersive environments. “I’m neurodivergent myself, sometimes when I’m a little bit overwhelmed at an event, it would be lovely to have a little safe space to have a breather,” Magda says.

So that is what The Sound Sanctuary provides – a safe space for partiers to “chat to people whenever they need it.” Magda met Cerys through a passion for drug education in the rave scene, and she is now a crucial part of The Sound Sanctuary. Currently studying a masters in Chemistry at NTU, Cerys does drug testing assistance with an organisation called The Loop, based in Bristol. Drug testing identifies the presence of dangerous substances such as nitazenes, an extremely potent synthetic opioid which party drugs can be contaminated with. 

“If someone gets to the point where they’re a bit worried about what they have, they come to see us. I can do nitazine testing, xylazine testing and some reagent testing, just to help them navigate what they have.”

Magda holds their finger and thumb up, leaving a tiny gap between. “Even that much of a contaminant like xylazine or nitazine can cause an overdose death.”

Both Cerys and Magda tell stories of friends whose drug experiences inspired their passion. “I’ve lost people in my community through drug death that could have been preventable, had they known what was in their drugs, had they had access to naloxone when they needed it,” Cerys says.

The Sound Sanctuary originated from a gap Magda noticed for harm reduction within young people and the rave and club scene. They moved to Nottingham from Italy, which was very harm reduction oriented. By comparison, Magda felt that within the UK scene this approach was completely absent.

“Harm reduction services in Nottingham at the minute – you often have to go and find them,” Cerys says. Magda explains that you have to refer yourself and you don’t know if you’re going to be judged or accepted. The result is that younger people who take drugs at parties feel cut off from seeking support.

The Sound Sanctuary aims “to meet them where they are, which is at parties and at raves, then it opens more opportunities for them to learn about harm reduction as drug users,” says Cerys.

“If you go to an event, you’re not having a great time, or you have a few questions about previous experiences you’ve had, and you see two young people sitting there who enjoy the music, who seem really approachable, it definitely changes the experience. It makes it a lot more welcoming,” Magda says.

Though Magda learned about substance education with the University of Nottingham and trained with Nottingham Recovery Network, The Sound Sanctuary is currently funded out of their own pocket. They have launched a fundraiser to raise £600 for supplies, including more drug testing and a new gazebo after theirs was damaged by the wind. The more the collective grows, the more they need to replenish supplies, and costs quickly mount up.

Coming into colder weather, Magda wants to use some of the fundraiser to ‘winter-proof’ The Sound Sanctuary. “Raves still go on during the winter and that’s the most dangerous time because you’re now talking about drug induced hypothermia, things like that. A lot of supplies will help in the colder months – heaters and hot water tanks for teas and coffees will be fundamental.”

The Sound Sanctuary was borne ultimately out of a love for the scene – parties, music, dancing, and the desire to enable everyone attending to feel safe and have the best time they can.

“Drug use is a real fact, and it does happen every day – ignoring it is not helping,” says Magda. “Some people are a bit unsure – are we promoting use?” says Cerys – but as she maintains: “it is just providing education and welfare, which doesn’t harm anyone.”


To follow the Sound Sanctuary or donate to the fundraiser head to their Instagram page below.

@rigside23

https://www.gofundme.com/f/raving-safe-the-sound-sanctuary-harm-reduction-collective

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Nottingham Green Festival

A diminished event after problems with the insurance cover

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Interview with Stewart Lee for BBC Radio 4 : Artworks What Happened to Counter-Culture?

https://www.bbc.co.uk/programmes/m002hkx3

ep. 4. Culture Clash

My contribution / interview on Beanfield etc at 25:00 mins

More than just a cultural trend – counter-culture became a social movement so powerful it shaped institutions, businesses, politics and the attitudes and aspirations of whole generations – including everything from haircuts to voting choices. In fact, it became so prevalent that it’s sometimes hard to remember how things have changed under its influence.

Comedian Stewart Lee presents a five-part series exploring the evolution and key ideas that have driven counter-culture from its beginnings with the Beats, folk and jazz in the 1950s, to its heights in the 1960s and 70s – including the hippies and the early tech-communalists, the new liberation movements and punk, to the 1980s and early 90s, where political power on both sides of the Atlantic pushed back against the values of the ‘permissive society’.

Talking to artists, musicians, writers, activists and historians, Stewart continues to the present day asking where we are now, in the digital age of social media silos and the so-called ‘culture wars’ – what’s happened to counter-culture? Was it co-opted, did it sell out? Or did its ideas of freedom and identity become so entrenched within mainstream culture it’s legacy has become unassailable? Or has it migrated politically to the Right? Throughout the series, the counter-culture is explored not only in terms of its history, extraordinary cultural output and key events – but also its deeper political and philosophical impact, it’s continued meaning for our own age.

In part 4, Culture Clash, the counter-culture generates opposition of its own – first in the courts and then from government. As the infamous Oz magazine trial puts the British underground press in the dock for ‘corrupting public morals’, the UK underground extends outside London to urban communities across the country, creating vibrant, alternative scenes in the 1970s and 80s, despite growing opposition from government.

Punk re-energises some of the same counter-cultural, DIY values as the hippie movement and joins with reggae, by now the music of Black British counter-culture, to form a powerful, multifaceted cultural challenge to mainstream politics and society.

But has the free individualism of the 1960s become hardened and monetised into a version of its own worst enemy – the economic self-centredness of the 1980s? This episode explores the pushback – a political ‘counter’ counter-culture – led by the Thatcher and Reagan governments respectively, explicitly opposing the ideas of the ‘permissive society’ and 1960s counter-culture in Britain and America. In the UK, following its success defeating the NUM, the Conservative government targets the alternative culture of ‘new age travellers’ culminating with the ‘Battle of the Beanfield’ in June 1985, one of the most violent police operations in British history.

Contributors include journalist and author John Harris, photographer Lisa Law, former Oz and IT journalist Jonathon Green, Geoffrey Robertson KC, musician Brian Eno, critic and author Paul Morley, historian Andy Beckett, founding member of Steel Pulse and director of the Black Music Research Unit Mykaell Riley, fashion designer and founding member of XR Clare Farrell, historian and journalist Simon Heffer, guitarist and songwriter Johnny Marr, and photographer Alan Lodge.

Presenter: Stewart Lee
Producer: Simon Hollis

A Brook Lapping production for BBC Radio 4

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Landing at East Midlands Airport

Landing at East Midlands Airport returning from Belfast International Airport. A very clear and great evening light. Ryanair Boeing 737-800 [seat 28A] #landing #ryanair #belfast #737-800 #aircraft

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Take off from Belfast International Airport

Take off from Belfast International Airport, returning to East Midlands Airport. A very clear and great evening light. Ryanair Boeing 737-800 [seat 28A] #takeoff #ryanair #belfast #737-800 #aircraft

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Tash’s police negotiations, Longstock Free Festival, Summer Solstice 1991

Tash’s police negotiations, Longstock Free Festival, Summer Solstice 1991 A masterclass in reasonableness 🙂 Working with charities Festival Welfare Services FWS & Travellers Aid Trust TAT …. I was frequently asked to deal with police negotiations and witnessing. It was not often caught on film … but this one was. The police wanted to close the road to the site at Longstock because of the volume of traffic, road safety etc and people where rightly cross at the continued harassment ….. I simply suggested a one-way system. Then to ask folks if this was acceptable. I conceal my crossness really well innit. xx Credit : Gareth Morris, Neil Goodwin #police #longstock #free #festival

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